LAL-D (Lysosomal acid lipase deficiency) Workshop

ISTisNA Platform project coordinator Pelin Ulca participated in the LAL-D (Lysosomal acid lipase deficiency) Workshop, which was organized jointly by ELPA (European Liver Patients Association), HEPYASAM and the Turkish Liver Foundation and held in Istanbul on  June 1-2, 2023. In order to raise awareness in the field of rare diseases and to support the rare disease community, presentations, and networking were carried out within the scope of dissemination activities of the ISTisNA Platform project. The clip prepared by Acibadem University Rare Diseases Student Club for Rare Diseases Day 2022 was shared with the participants.